Patty’s Journey of Faith: What Is Going On!!


Even though it is November two, I am going to go back when every thing began altering. I had a scan the initial week of August, and it showed far more development than stability on the INCB054828 trial. At this point, Dr. Meric-Berstam and I decided it was time to exit that trial. The side effects had gotten worse, and the negatives have been unquestionably beginning to outweigh the positives. I was also operating a low grade fever for about a week when all of the above occurred, and soon after consulting with Dr. Javle, we agreed it was finest to wait till the fever stopped just before beginning a new trial.

Life seemed to drag by every day, and as every day passed, my be concerned and anxiousness was increasing like a snowball getting rolled downhill. I was off of any therapy to quit my cancer from increasing, and I was starting to really feel alone and depressed. There have been days I did not shower for 3 days as I definitely believed I was dying, so why care about my appearances. I barely left the property. This is the initial time I let depression get the finest of me. All through the previous (virtually 7 years), I have never ever felt so alone and I just felt like it was “my time.” I wasn’t consuming a lot, and I was starting to lose weight.

All through August and into September, the every day fevers never ever went away. I saw my neighborhood medical doctor, and soon after removing my port to eradicate it as a supply of infection, I had an appointment with an infection illness medical doctor. He rapidly determined there was nothing at all else to blame. The fevers have been tumor fevers.

About the second week of September, Dr. Javle and I agreed it was time to get me on a new targeted therapy clinical trial for the FGFR mutation. This is my third FGFR trial…..and I necessary a miracle to quit the cancer increasing inside my physique. On September 19, my daughter, Jennifer, and I traveled to Houston to get started the TAS 120 trial at MD Anderson Cancer Center. Scans confirmed my cancer was carrying out a pleased dance inside of me. I was not shocked it was increasing. Testing to make confident I was eligible for the trial moved rapidly and swift….we did not waste any time and I was authorized inside days. We have been even in a position to stop by the cholangiocarcinoma lab (along with various board members from The Cholangiocarcinoma Foundation) at MD Anderson and were honored to meet the lead researcher, Dr. Larry Kwong.

I began taking the drug for the TAS 120 trial on September 21, 2017. On September 24, my fevers have been gone. Pat returned residence from his hunting trip a handful of days later, and he was adamant that the trial was operating, as I was a entirely new individual. Quickly soon after, I was going for walks. I was possessing lunch with mates. I began watching grandchildren once more. I went to the Covered Bridge Festival for the day.

Just after six weeks on the trial, I am back to painting and thinking of a fourth children’s book. I am feeling like the old me and not worrying about when I am going to die. I am LIVING Once again!!

This trial has a lot fewer side effects and I am carrying out so nicely!! Drum roll please!!  Just after just six weeks on the TAS 120, my scan on October 30 shows that general I had 40% reduction in the general size of the cancer!  This news was the best news in about a year for me. My medical doctor stated I have had the finest response of all of his individuals on this trial. There have been two other individuals on this trial that had a scan the identical day as me. We all had good responses! Dr. Javle had talked about the TAS 120 a handful of instances more than the previous various months even though I was on the INCB trial. He stated we had a backup strategy, and he definitely believed it would be a fantastic match for me when the time came. I am so glad he has constantly had a strategy at just the ideal time. You see….this is the variety of medical doctor I want in my corner. One particular who is constantly 3 actions ahead of me when it comes to my well being and what will retain me alive with the finest high-quality of life.


More than the previous 7 years, I have thanked God so extremely several instances for the life I have had given that getting diagnosed with this dreaded cancer. When I lay my head down every evening, as I pray and thank God for all the memories that I have produced with loved ones and mates. I am so really blessed with my loved ones right here in Illinois and the loved ones I hold dear to my heart in Houston. When I was diagnosed, my outlook was not fantastic. Not fantastic at all, BUT I have never ever lost my faith. I know God is nevertheless ideal beside me each and every single day.

I am living every single day! My well being and my thoughts are as fantastic as it can be ideal now! I have lost about 15 pounds and am maintaining my weight steady. I am consuming typical once more due to the fact I really feel typical once more! I am pondering about joining a fitness center once more to get every day exercising. I went outdoors with Pat this morning and we walked 1 1/four miles….it really is a get started!!
I appreciate all the individuals who have referred to as or emailed me due to the fact I went so extended in amongst this post and my final post back in July. People today who referred to as just to verify on me are so appreciated in a cancer patient’s life!!.

Be patient with me to post once more, as I am as well busy attempting to keep alive and living every day to its fullest!! I guarantee it will not be an additional three months!!



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