I had a scan on December 12th and it shows the trial drug is nonetheless working1 There was slight shrinkage in areas and stability in other people. No development anyplace on the TAS120 trial. My liver enzymes are properly inside variety except the Alk Phos but it is moving in the correct path.
I am feeling a lot superior but I ought to not appear so hot as I see the “Oh My Gosh” appears from folks when I am out and about. I really do really feel excellent correct now! I received an iron infusion due to low hemoglobin (anemic) at RMH but so far have not observed a distinction in my labs. Dr. Javle states some folks require the second one particular so I could be undertaking that prior to January gets Truly crazy!
I return for blood perform and to see the properly identified CC physician on January two, 2018. And then, on January 13, my 4 daughters, my son in laws, Pat and I, plus a further couple will attend the Andrea Remembered Occasion in Evansville, Indiana. It will be my third time attending this super enjoyable occasion! This occasion has raised extra than $495,000 for college scholarships for students attending USI in Indiana. The student ought to have a parent who has passed to be eligible for the scholarship. Andrea Remembered.org also donates funds to the Cholangiocarcinoma Foundation-to date more than $200,000! Dan Fuquay began this organization right after his wife passed from cholangiocarcinoma. What a present they have supplied for students and households impacted by cancer.
Right after we all attend this occasion, my life gets a tiny busy for a cancer patient! On January 18, Pat and I drive to Georgia to see Kate’s (my step daughter) boyfriend graduate from Homeland Safety College. Right after a handful of days there, we will drive straight on to Houston for a comply with up appointment with Dr. Javle. On January 27, Pat and I will board a train in Effingham that will take us to Chicago. Right after a four 1/two hour layover there, we will board the train for Salt Lake City, Utah for The Cholangiocarcinoma Conference we have attended the final 3 years. We will be on the train for about 33 hours from Chicago to SLC! I have by no means ridden a train so I wanted to knowledge countryside views, quiet relaxation of just the hum of the train rumbling down the track, and possibly the occasional chatter of other passengers on the train. Pat rented a sleeper car or truck plus we are traveling 1st class. The actual conference in STL begins on Jan. 31 but I am arriving late on the 28th for some coaching and telephone conferences with other CCF employees/volunteers. The Conference ends Feb two right after numerous physicians, researchers, drug organizations, fellow CC individuals hear lots of fascinating issues in the CC globe. Right after we board a plane in Salt Lake City, we will really travel to Las Vegas exactly where my stepson, Tom lives. We will check out with him about five days prior to boarding but a further plane to fly home. This leaves us coming property on Feb 7th, only to board a plane once again on Feb 11 for a new scan, lab perform, and a further check out with Dr. Javle. But my life just keeps finding superior! Pat and I have consolidated Christmas, my birthday, our anniversary, and Valentines Day into one particular huge present to every other with a trip! We will drive to Indianapolis to fly out vibrant and early on Feb.17 to a Sandal’s Resort in Antigua. It will be our second check out to a Sandal’s Resort and they are just leading notch in my book!
We will return from the trip on Feb. 24 only to rest a week prior to jetting back to Houston for but a further comply with up check out. I have visits with Dr. Javle each and every 3 weeks considering the fact that getting on the TAS120 trial. But, it is operating so there is no space for whining about all the trips to Houston!
I am feeling superior now than I have in really some time. So….if you see me and believe I am hunting not so hot, it may well be due to the truth I am hardly sitting down on this crazy life of mine!! I thank our God numerous occasions a day for the memories and fantastic wellness I am obtaining correct now. It really is a miracle that I am nonetheless marching right here on this earth. God does answer prayers and no one particular knows that superior than me! So, hold the prayers coming as He really does hear you!! No one particular knows how lengthy the ride on this trial will take me but I am not going to sit on my perch at property worrying about it! There is a further trial my physician currently has in thoughts for me IF and when this cancer outsmarts the effectiveness of this trial drug.
Life is quick….occasionally coming to an abrupt quit! It is the memories we make with our life that make it the ideal journey. I am in no way excellent or superior than the subsequent particular person. I ask God WHY I am getting blessed with extra time than most individuals with CC. the answer I get back is……WHY NOT?
None of us know why some of us pass with out any warning. And there are numerous occasions I believe it ought to have been me alternatively of a young kid or mother. I do not ‘get it” mainly because I am far from excellent. It tears at my heart when folks have passed way also young from cancer or one thing else. Each day I wake up, I inform God I am going to attempt to be a superior particular person….only to lay my head down that evening and inform God I am sorry I have failed so miserably…once again! But…God currently knew I was going to fail…..but He is nonetheless there to listen and guide me every day.
So, I will continue to MARCH in my present life! !! I will be beginning my 8th year with this beast of a cancer beginning in February!!
With God, my loved ones and buddies, I will make numerous extra memories till it is MY TIME!!
God Bless every and each and every one particular of you!!
Merry Christmas 2017!